Bottle stress

Well, now we are looking at bringing him home early next week. We are giving him another week to get used to feeding and then if he is still getting tube fed by this coming Monday we will still bring him home with the tube.

The other night I decided not to spend the night and told the nurse to feed him a bottle (as long as he responds ok and is wide awake). I thought that if he is awake it would be more beneficial for him to get his feeding orally instead of by a tube. He will have to learn to get all his feedings orally eventually and have to learn to eat from a bottle someday. It has to be confusing for him if he is laying in bed wide awake and his tummy begins to fill up from the tube. Well that idea was a bad one because he was very stressed for the rest of the day from that one bottle feeding. He stopped breathing a few times and his heart rate dropped also. Josiah has showed us that he cannot be pushed and that he does not like change. So I hope that the change of coming home will not stress him out also.

Pray that I have patience with him as he is slowly learning to feed. Pray that God will guide me on where I should be (hospital or home) each day. God is faithful in that everytime I get discouraged and think that I cannot do this anymore, he gives me a glimpse of hope (such as Josiah smiling at me). Pray that the work of God might be displayed in Josiah's life (John 9).