Thank you for all the prayers during these last couple of months. This has truly been the hardest thing I have ever been through. Without all the love and support that we have received from friends and family, we would not be able make it through each day. And of course ultimately God has given us strengthen to continue through this trial with our heads up.
I want to apologize for not giving updates as often or as detailed as I would like. I have found that it is very hard for me to update people with news that is not as good as I would like it to be. It is hard to say "yes, Josiah is still in the hospital", "he is still getting some feedings from a tube", etc. However, it is hard for others to pray for the situation when you don't know what is going on or what to pray for.
Currently, we are still at the hospital and hoping to go home sometime next week. However, in the past things have been so up and down that we are not getting our hopes up. Josiah will most likely go home with a feeding tube. He has learned to nurse, but only for about 50% of his feedings. The rest of his feedings he gets from a tube that goes through his nose and down into his stomach. We have tried to give him a bottle a few times, but he responds poorly to bottle feedings. When we have given him a bottle, he show signs of stress with his arms stretched straight out and all his fingers splayed as if he is trying to say STOP. In addition, his heart rate, breathing rate, and oxygen saturation in his blood all drop when he drinks from a bottle. So I guess he is hooked on the breast... I have the same problem with Craig ;). Usually the hospital will not send babies home with tube feedings, however since Josiah is stable they are considering teaching us how to tube feed him in order to come home sooner. Being home with or without a tube will take a ton of stress off Craig and me. I have been spending the night at the hospital to nurse and Craig has been staying home with Iylah. Being apart has been so draining and discouraging.
Thanks again for all the prayers. I will do my best to keep this blog updated.
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Hi guys - thanks for the update! Now I understand why you're feeling like you have to spend the night at the hospital. We're praying for him to come home soon and for you to learn all that you need to in order to take care of him at home. The nice thing will be that when you do get to go home, you have a direct link to Sara! Thanks again for the update, can't wait to see more pictures. Love you little guy!
ReplyDeleteYou all have been so much in my thoughts and prayers! And I'll be praying that you will be able to come home this week WITHOUT the tube! :). God knows every little detail and is holding little Josiah as He gives you strength daily to make it through each step of this journey. Know that you have lots of prayer support!
ReplyDeleteLove you Josiah, you are always in our prayers!!
ReplyDeleteYou are, as always, in our prayers.
ReplyDeleteYou have shown AMAZING strength through this, Cherie - what a great mom you are.
love you guys
Erin
I'm so happy to hear that you are going home (or have arrived home) with little Josiah!! God will be orchestrating every little detail and working through each step. Trust HIM through all the good times and remember He's there through all the difficult times! It's been a long 8 weeks for your family, and I know you would have chosen a different journey. But your testimony has been amazing! Barbie and I would love to stop by and see you once she's back in town and you're settled into a routine at home.
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