Glasses

We recently ordered glasses for Josiah... he will look so cute. Hopefully Josiah tolerates them on his face. We were going to wait till Josiah was 8 months old to see if his eyes corrected on their own, but they seemed to be getting worse. So it was better to go with glasses sooner. Hopefully the glasses will help him from going cross-eyed when he focuses. As far as his eyes shaking, we will have to wait for him to grow out of that (at about 2 to 3 years old). We will have a MRI on his head at the same time he has surgery (along with the MRI on his lumbar spine) to rule out any issues in his head that can cause his eyes to shake. Both the neurologist and ophthalmologist said this is unlikely the case, but they must be sure with an MRI scan.

His heart is still the same... in fact the cardiologist said that there is a chance that if his heart continues to stay the same and he continues to grow and develop he might not need to get his heart repaired!

Currently there is no scheduled date for his surgery on his testes. He will get that surgery sometime before one year of age. The urologist said he could get it now, however I want him to grow more. He did not do well with anesthesia before, so the bigger he is the better.

Feeding continues to be on ongoing battle. He still has the hardest time with a bottle. I feel like it is hit or miss with the bottle. He freaks out when I try to give him a bottle. Which I have only tried once to see how much he is eating now. Josiah does best when Craig feeds him with it. He still nurses better than anything. We may try solids soon, but I am uncertain how his system will tolerate anything besides breastmilk. And PRAISE GOD because we are still not needing the NG tube!!!

At Josiah's last appointment he weighed 10 lbs 6 oz! Slowly but surely he is growing. :) He is very happy as long and I am around. He still has gassy pain and reflux, but is getting better. Lately he has been giggling at me when I giggle... I love this!

Pray that Craig and I take in all these moments (good and bad) to their fullest... I don't know if that makes sense. I recently looked back at some video from when Josiah was first born in the NICU in Colorado Springs. It all seems like such a blur. Even now seems like such a blur some days. Craig and I have come to short moments where our mind goes blank and we don't know where we are in our lives... we're married? have kids? in school? working? It is a horrible feeling. It kind of seems like a hurricane came through and we have not yet even come close to getting everything cleaned up after the disaster. I do feel very blessed with both Josiah and Iylah. I don't feel like Josiah is the hurricane. It is just that life has taken so many unexpected turns in these last 7 months that I loose track of where I am. Praise that God blessed us with a little girl that has so much patience and understanding even at 2 years old. Iylah has such a huge heart and has made this journey so much easier. People are constantly commenting how good she is. I am not sure what I would do if she was doing the typical 2 year old things (like throwing fits, etc) in the middle of Joisah's numerous doctor appointments. Thank you all for praying for our family.